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NINDS Biospecimen Review Access Committees

BioSEND works with multiple disease and condition specific Biospecimen Review Access Committees. Each BRAC includes representatives from studies which banked the samples, extramural researchers with expertise in clinical research, biomarker discovery and validation, biostatisticians. The BRACs accept applications on a rolling basis; you can find the review schedule, lists of approved requests, and roster of the current committee members on the NIH-hosted BRAC webpages.

Committee

Huntington’s Disease Biospecimen Review Access Committee

The Huntington’s Disease Biospecimen Review Access Committee (HD BRAC) reviews applications for samples from studies of Huntington’s disease and HD-related gene expansions.

Learn more about the HD BRAC

Leukodystrophy Biospecimen Review Access Committee

The Leukodystrophy Biospecimen Resource Access Committee (LD BRAC) reviews applications for biospecimens collected through The Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN). The biospecimens represent a variety of leukodystrophies, including Aicardi–Goutières syndrome (AGS), Metachromatic Leukodystrophy (MLD), Pelizaeus Merzbacher Disease (PMD), and more.

Learn more about the LD BRAC

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Biospecimen Review Access Committee

The Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Biospecimen Review Access Committee (ME/CFS BRAC) reviews applications for samples from studies of ME/CFS.

Learn more about the ME/CFS BRAC

Parkinson's Disease Biospecimen Review Access Committee

The Parkinson's Disease Biospecimen Review Access Committee (PD BRAC) reviews applications for samples from the PD, LBD, MSA, PSP, and other PD-related disorders banked in BioSEND. The PD BRAC also reviews requests for specimens from a number of studies funded or managed by the Michael J. Fox Foundation, including DATATOP and the LRRK2 Consortium Cohort.

Learn more about the PD BRAC

Spinocerebellar Ataxia Biospecimen Review Access Committee

The Spinocerebellar Ataxia Biospecimen Review Access Committee (SCA BRAC) reviews applications for samples from studies of SCA1, SCA2, SCA3, SCA6, SCA7, SCA8, SCA10, and others.

Learn more about the SCA BRAC

Traumatic Brain Injury Biospecimen Review Access Committee

The Traumatic Brain Injury Biospecimen Review Access Committee (TBI BRAC) reviews applications for samples from studies of TBI, CTE, and concussion.

Learn more about the TBI BRAC

Partner Review Committees

National Centralized Repository for Alzheimer's Disease and Related Dementias Biospecimen Review Committee (NCRAD BRC)

Because of their expertise, BioSEND has partnered with our sister repository, NCRAD, for review of requests for samples from the ESFTLD cohort.

NCRAD BRC Committee Members