Welcome FTLD Study staff, coordinators, and PI’s. This section encompasses study specific tools and resources for your reference. If you have any questions, comments, or new ideas please contact biosend@iu.edu or by phone directly at (317)278-0594.

Specimen Table

Cohort Population Genomic DNA RNA Plasma CSF Whole Blood
FTLD FTD Cases

Study Resources

Kit Request Module

Please follow the below link to access the FTLD Kit Request Module. This link will direct you to a REDCap database where study coordinators and staff may request kits, individual supplies, and/or labels. Please allow a total of two weeks for kit requests to be compiled and delivered to your site.

FTLD Kit Request System

Study Specific Sample Notification Forms

Please use the below downloadable form to collect information on subject demographics, collection, and processing. We ask that all completed forms be emailed to biosend@iu.edu or faxed (317-278-1100) prior to shipment. If you complete the form on the website, you can choose to have it emailed automatically to us. We also ask that all shipments include a hard copy of each sample form.

Sample Record and Shipment Notification Form (pdf)
Sample Record and Shipment Notification Form (xlsx)

FTLD Manual of Procedures

The below downloadable manual was created specifically for the FTLD study. Please feel free to explore the manual through the hyperlinked ‘Table of Contents’. Questions concerning any part of the manual may be directed at to Scott Kaiser (317-278-0594) for further clarification.

FTLD Manual of Procedures

FTLD Training Slides

These slides correspond to BioSEND FTLD protocol training. Refresher training is available upon request by contacting biosend@iu.edu.

New Coordinator Training Slides

FTLD Site Listing

  • University of Michigan
  • Columbia University
  • Dublin Neurological Institute