Welcome ALL ALS Study staff, coordinators, and PIs. This section encompasses study specific tools and resources for your reference. If you have any questions, comments, or new ideas please contact biosend@iu.edu or by phone directly at (317)278-0594.

Specimen Table

Cohort Population Genomic DNA RNA Plasma Serum CSF Whole Blood PBMC
PREVENT ALS asymptomatic individuals at risk for carrying inherited genetic variants known to be causative for ALS ✔ ✔ ✔ ✔ ✔ ✔ ✔
ASSESS ALS symptomatic ALS and control participants ✔ ✔ ✔ ✔ ✔ ✔

Study Resources

Kit Request Module

Please follow the below link to access the Kit Request Module. This link will direct you to a REDCap database where study coordinators and staff may request kits, individual supplies, and/or labels. Please allow a total of two weeks for kit requests to be compiled and delivered to your site.

PREVENT ALS Kit Request System
ASSESS ALS Kit Request System

Specimen Collection and Processing Form

Please use the below link to access the collect information on specimen, subject demographics, and collection. This form must be completed prior to shipment. We also ask that all shipments include a physical copy of the shipping manifest portion of the form.

PREVENT ALS Specimen Collection and Processing Form
ASSESS ALS Specimen Collection and Processing Form

Manual of Procedures

The below downloadable manual was created specifically for this protocol. Questions concerning any part of the manual may be directed to biosend@iu.edu.

PREVENT ALS Manual of Procedures
ASSESS ALS Manual of Procedures

Training Slides

These slides correspond to BioSEND training for this protocol. Refresher training or training for new staff is available upon request by contacting biosend@iu.edu.

PREVENT ALS Training Slides
ASSESS ALS Training Slides

ALL ALS Site Listing

  • East Coordinating Center:

  • 702 Houston Methodist

  • 709 Dartmouth Hitchcock

  • 710 Duke University

  • 711 Emory University

  • 713 Johns Hopkins University

  • 723 UCSF

  • 744 Indiana University ALS Center at IU Health

  • 765 Penn State

  • 769 Texas Neurology

  • 833 Hospital for Special Care

  • 839 Nebraska Medicine ALS Treatment Center

  • 892 Virginia Commonwealth Univ

  • 907 Temple University

  • 936 Our Lady of the Lake Regional Medical Center

  • 959 University of Alabama, Birmingham

  • West Coordinating Center:

  • 701 MGH

  • 706 Henry Ford Health

  • 708 Columbia Univ

  • 718 Mayo Clinic

  • 741 Wash U

  • 753 Georgetown Univ

  • 754 UCSD

  • 762 Ohio State Univ

  • 763 Providence Brain

  • 777 UC Irvine

  • 779 Univ Colorado Den

  • 784 Univ Michigan

  • 796 Univ Utah

  • 798 Univ Washington

  • 812 Northwestern

  • 816 Puerto Rico

  • 844 Barrow Neurological Institute

  • 929 Saint Alphonsus

  • 946 Univ Minnesota

Downloads

Additional Resources

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