Welcome CRC-SCA Study staff, coordinators, and PIs. This section encompasses study specific tools and resources for your reference. If you have any questions, comments, or new ideas please contact biosend@iu.edu or by phone directly at (317)278-0594.

Specimen Table

Cohort Population Plasma Genomic DNA Serum CSF
CRC-SCA Participants with a diagnosis of SCA 1, 2, 3, 6, 7, 8, or 10

Study Resources

Kit Request Module

Please follow the below link to access the CRC-SCA Kit Request Module. This link will direct you to a REDCap database where study coordinators and staff may request kits, individual supplies, and/or labels. Please allow a total of two weeks for kit requests to be compiled and delivered to your site.

Kit Request System

Sample Record and Shipment Notification Form

Please use the below link to access the collect information on specimen, subject demographics, and collection. This form must be completed prior to shipment. We also ask that all shipments include a physical copy of the shipping manifest portion of the form.

Sample Record and Shipment Notification Form

Manual of Procedures

The below downloadable manual was created specifically for the CRC-SCA study. Questions concerning any part of the manual may be directed to Claire Wegel at Claire Wegel or (317-278-6158) for further clarification.

Manual of Procedures

Training Slides

These slides correspond to BioSEND CRC-SCA protocol training. Refresher training or training for new staff is available upon request by contacting biosend@iu.edu.

New Coordinator Training Slides

Site Listing

  • Columbia University

  • Emory University

  • Houston Methodist Research Institute

  • Johns Hopkins University

  • Massachusetts General

  • Northwestern University

  • University of California Los Angeles

  • University of California San Francisco

  • University of Chicago

  • University of Florida

  • University of Michigan

  • University of Minnesota

  • University of Montreal

  • University of Pennsylvania

  • University of South Florida

  • University of Washington

  • UT Southwestern Medical Center

  • University of Utah