Welcome JoHD Study staff, coordinators, and PIs. This section encompasses study specific tools and resources for your reference. If you have any questions, comments, or new ideas please contact biosend@iu.edu.

Specimen Table

Cohort Population Plasma Genomic DNA
JoHD Children, adolescents, and young adults (ages 6-30) who have been diagnosed with JoHD

Study Resources

Kit Request Module

Please follow the below link to access the JoHD Kit Request Module. This link will direct you to a REDCap database where study coordinators and staff may request kits, individual supplies, and/or labels. Please allow a total of two weeks for kit requests to be compiled and delivered to your site.

Kit Request System

Specimen Collection and Processing Form

Please use the below link to access the collect information on specimen, subject demographics, and collection. This form must be completed prior to shipment. We also ask that all shipments include a physical copy of the shipping manifest portion of the form.

Specimen Collection and Processing Form

Manual of Procedures

The below downloadable manual was created specifically for the JoHD study. Questions concerning any part of the manual may be directed to biosend@iu.edu.

JoHD Manual of Procedures

Training Slides

These slides correspond to BioSEND JoHD protocol training. Refresher training or training for new staff is available upon request by contacting biosend@iu.edu.

JoHD Training Slides

Site Listing

  • University of Iowa

  • University of California-Davis

  • University of Texas

  • Columbia University

  • Children's Hospital of Philadelphia

  • Vanderbilt University