Welcome RAPA-501-ALS-EAP Study staff, coordinators, and PIs. This section encompasses study specific tools and resources for your reference. If you have any questions, please contact biosend@iu.edu.

Specimen Table

Cohort Population Serum
RAPA-501-ALS-EAP Patients with sporadic or familial amyotrophic lateral sclerosis (ALS)

Study Resources

Kit Request Module

Please follow the below link to access the Kit Request Module. This link will direct you to a REDCap database where study coordinators and staff may request kits, individual supplies, and/or labels. Please allow a total of two weeks for kit requests to be compiled and delivered to your site.

RAPA-501-ALS-EAP Kit Request System

Specimen Collection and Processing Form

Please use the below link to access the collect information on specimen, subject demographics, and collection. This form must be completed prior to shipment. We also ask that all shipments include a physical copy of the shipping manifest portion of the form.

Specimen Collection and Processing Form

Manual of Procedures

The below downloadable manual was created specifically for this protocol. Questions concerning any part of the manual may be directed to biosend@iu.edu

RAPA-501-ALS-EAP Manual of Procedures

Training Slides

These slides correspond to BioSEND training for this protocol. Refresher training or training for new staff is available upon request by contacting biosend@iu.edu.

RAPA-501-ALS-EAP Training Slides

RAPA-501-ALS-EAP Site Listing

  • Emory University

  • Massachusetts General Hospital

  • University if Iowa

  • Additional Sites to be Added