Welcome SCA Study staff, coordinators, and PIs. This section encompasses study specific tools and resources for your reference. If you have any questions, comments, or new ideas please contact biosend@iu.edu or by phone directly at (317)278-0594.
Specimen Table
Cohort | Population | Genomic DNA | Plasma | CSF |
---|---|---|---|---|
SCA | Premanifest and early-stage SCA1 and SCA3 individuals | ✔ | ✔ | ✔ |
Study Resources
Kit Request Module
Please follow the below link to access the SCA Kit Request Module. This link will direct you to a REDCap database where study coordinators and staff may request kits, individual supplies, and/or labels. Please allow a total of two weeks for kit requests to be compiled and delivered to your site.
SCA Kit Request SystemStudy Specific Sample Notification Forms
Please use the below downloadable form to collect information on specimen patient, subject demographics, collection, and processing. We respectfully ask that all completed forms be emailed (biosend@iu.edu) or faxed (317-278-1100) prior to shipment. If you complete the form on the website, you can choose to have it emailed automatically to us. We also ask that all shipments include a hard copy of each sample form.
Sample Record and Shipment Notification Form (pdf) Sample Record and Shipment Notification Form (xlsx)SCA Manual of Procedures
The below downloadable manual was created specifically for the SCA study. Please feel free to explore the manual through the hyperlinked ‘Table of Contents’. Questions concerning any part of the manual may be directed at to Claire Wegel (317-278-6158) for further clarification.
SCA Manual of ProceduresSCA Training Slides
These slides correspond to BioSEND SCA protocol training. Refresher training is available upon request by contacting biosend@iu.edu.
New Coordinator Training SlidesSCA Site Listing
Columbia University
Houston Methodist Hospital
Johns Hopkins University
Emory University
Massachusetts General Hospital (Harvard Medical School)
Northwestern University
Stanford University
University of Alabama-Birmingham
University California-Los Angeles
University California-San Francisco
University of Chicago
University of Colorado
University of Florida
University of Michigan
University of Minnesota
University of Rochester
University of South Florida