Welcome SCA Study staff, coordinators, and PIs. This section encompasses study specific tools and resources for your reference. If you have any questions, comments, or new ideas please contact biosend@iu.edu or by phone directly at (317)278-0594.

Specimen Table

Cohort Population Genomic DNA Plasma CSF
SCA Participants with a diagnosis of SCA1/SCA3 and controls

Study Resources

Kit Request Module

Please follow the below link to access the SCA Kit Request Module. This link will direct you to a REDCap database where study coordinators and staff may request kits, individual supplies, and/or labels. Please allow a total of two weeks for kit requests to be compiled and delivered to your site.

SCA Kit Request System

Study Specific Sample Notification Forms

Please use the below downloadable form to collect information on specimen patient, subject demographics, collection, and processing. We respectfully ask that all completed forms be emailed (biosend@iu.edu) or faxed (317-278-1100) prior to shipment. If you complete the form on the website, you can choose to have it emailed automatically to us. We also ask that all shipments include a hard copy of each sample form.

Sample Record and Shipment Notification Form (pdf)

SCA Manual of Procedures

The below downloadable manual was created specifically for the SCA study. Please feel free to explore the manual through the hyperlinked ‘Table of Contents’. Questions concerning any part of the manual may be directed at to Claire Wegel (317-278-6158) for further clarification.

SCA Manual of Procedures

SCA Training Slides

These slides correspond to BioSEND SCA protocol training. Refresher training is available upon request by contacting biosend@iu.edu.

New Coordinator Training Slides

SCA Training Videos

SCA Site Listing

  • Columbia University

  • Houston Methodist Hospital

  • Johns Hopkins University

  • Emory University

  • Massachusetts General Hospital (Harvard Medical School)

  • Northwestern University

  • Stanford University

  • University of Alabama-Birmingham

  • University California-Los Angeles

  • University California-San Francisco

  • University of Chicago

  • University of Colorado

  • University of Florida

  • University of Michigan

  • University of Minnesota

  • University of Rochester

  • University of South Florida