Welcome CHANGE-HD Study staff, coordinators, and PIs. This section encompasses study specific tools and resources for your reference. If you have any questions, comments, or new ideas please contact biosend@iu.edu or by phone directly at (317)278-0594.

Specimen Table

Cohort Population Genomic DNA Plasma Whole Blood
CHANGE-HD Huntington Disease Cases and Controls

Study Resources

Kit Request Module

Please follow the below link to access the CHANGE-HD Kit Request Module. This link will direct you to a REDCap database where study coordinators and staff may request kits, individual supplies, and/or labels. Please allow a total of two weeks for kit requests to be compiled and delivered to your site.

CHANGE-HD Kit Request System

Study Specific Sample Notification Forms

Please use the below downloadable form to collect information on subject demographics, collection, and processing. We ask that all completed forms be emailed to biosend@iu.edu or faxed (317-278-1100) prior to shipment. If you complete the form on the website, you can choose to have it emailed automatically to us. We also ask that all shipments include a hard copy of each sample form.

Sample Record and Shipment Notification Form (pdf)

CHANGE-HD Manual of Procedures

The below downloadable manual was created specifically for the CHANGE-HD study. Please feel free to explore the manual through the hyperlinked ‘Table of Contents’. Questions concerning any part of the manual may be directed at to Claire Wegel (317-278-6158) for further clarification.

CHANGE-HD Manual of Procedures

CHANGE-HD Training Slides

These slides correspond to BioSEND CHANGE-HD protocol training. Refresher training is available upon request by contacting biosend@iu.edu.

CHANGE-HD Training Webinar

CHANGE-HD Site Listing

  • University of Iowa

  • University of California-Davis

  • University of Texas

  • Columbia University

  • Children's Hospital of Philadelphia

  • Vanderbilt University