Skip to main content

ALL ALS Consortium

Welcome ALL ALS Study staff, coordinators, and PIs.

Study specific tools and resources are linked below. You will want to bookmark this page for your reference! If you have any questions, comments, or requests, please contact biosend@iu.edu or by phone phone directly at (317) 278-6158.

General questions about the study, not related to the specimens, should be directed to your study leadership. Please contact: allals_info@dignityhealth.org

ALL ALS Logo.jpg
PREVENT: COLLECTION SCHEDULE FOR SPECIMEN TYPES
PREVENT: COLLECTION SCHEDULE FOR SPECIMEN TYPES
VisitVisit 1 Screening
Day 0 (Clinic)
Visit 2
120
± 30 days (Remote)
Visit 3
240
± 30 days (Remote)
Visit 4
365
± 60 days (Clinic)
Visit 5
360
± 30 days (Remote)
Visit 6
480
± 30 days (Remote)
Visit 7
730
± 60 days (Clinic)
Visit 8
600
± 30 days (Remote)
Visit 9
720
± 30 days (Remote)
Visit 10
1095
± 60 days (Clinic)
DNA (buffy coat)
Plasma
Serum
Whole Blood
RNA---------
PBMC---------
CSF------
ASSESS: COLLECTION SCHEDULE FOR SPECIMEN TYPES (SYMPTOMATIC)
ASSESS: COLLECTION SCHEDULE FOR SPECIMEN TYPES (SYMPTOMATIC)
VisitVisit 1 Screening
Day 0
Visit 2
120
± 30 days
Visit 3
240
± 30 days
Visit 4
360
± 30 days
Visit 5
480
± 30 days
Visit 6
600
± 30 days
Visit 7
720
± 30 days
DNA (buffy coat)
Plasma
Serum
Whole Blood
PBMC------
CSF
ASSESS: COLLECTION SCHEDULE FOR SPECIMEN TYPES (CONTROL)
ASSESS: COLLECTION SCHEDULE FOR SPECIMEN TYPES (CONTROL)
VisitVisit 1 Screening
Day 0
Visit 2
120
± 30 days
Visit 3
240
± 30 days
DNA (buffy coat)
Plasma
Serum
Whole Blood
PBMC--
CSF

Study Resources

Kit Request Module

Please follow the below link to access the AJPD Kit Request Module. This link will direct you to a REDCap database where study coordinators and staff may request kits, individual supplies, and/or labels. Please allow a total of two weeks for kit requests to be fulfilled.

Specimen Collection and Processing Form

Please use the below link to access the collection and processing forms for the ALL ALS consortium protocols. This form must be completed prior to shipment. We also ask that all shipments include a physical copy of the shipping manifest portion of the form.

manual of procedures

The below downloadable manual was created specifically for this protocol. Questions concerning any part of the manual may be directed to biosend@iu.edu (317-278-6158) for further clarification.

Training slides

These slides correspond to the BioSEND ALL ALS protocol training. Training is available upon request by contacting biosend@iu.edu.

Sample Shipping

BioSEND can receive samples Monday-Friday, excluding holidays. Frozen samples should be shipped M-W. Ambient samples may be shipped on Th.

Site Listing

  • East Coordinating Center:

  • 702 Houston Methodist
  • 709 Dartmouth Hitchcock
  • 710 Duke University
  • 711 Emory University
  • 713 Johns Hopkins University
  • 723 UCSF
  • 744 Indiana University ALS Center at IU Health
  • 765 Penn State
  • 769 Texas Neurology
  • 833 Hospital for Special Care
  • 839 Nebraska Medicine ALS Treatment Center
  • 892 Virginia Commonwealth Univ
  • 907 Temple University
  • 936 Our Lady of the Lake Regional Medical Center
  • 959 University of Alabama, Birmingham
  • West Coordinating Center:

  • 701 MGH
  • 706 Henry Ford Health
  • 708 Columbia Univ
  • 718 Mayo Clinic
  • 741 Wash U
  • 753 Georgetown Univ
  • 754 UCSD
  • 762 Ohio State Univ
  • 763 Providence Brain
  • 777 UC Irvine
  • 779 Univ Colorado Den
  • 784 Univ Michigan
  • 796 Univ Utah
  • 798 Univ Washington
  • 812 Northwestern
  • 816 Puerto Rico
  • 844 Barrow Neurological Institute
  • 929 Saint Alphonsus
  • 946 Univ Minnesota