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JOHD: LONGITUDINAL ASSESSMENT OF BRAIN STRUCTURE AND FUNCTION IN JUVENILEONSET HUNTINGTON'S DISEASE

Welcome JoHD staff, coordinators, and PIs.

Study specific tools and resources are linked below. You will want to bookmark this page for your reference! If you have any questions, comments, or requests, please contact biosend@iu.edu or by phone phone directly at (317) 278-6158.

General questions about the study, not related to the specimens, should be directed to JoHD study leadership Visit the Nopoulos Lab website

JOHD Logo
COLLECTION SCHEDULE FOR SPECIMEN TYPES
COLLECTION SCHEDULE FOR SPECIMEN TYPES
VisitBL12M
DNA (buffy coat)
Plasma

Study Resources

Kit Request Module

Please follow the below link to access the Kit Request Module. This link will direct you to a REDCap database where study coordinators and staff may request kits, individual supplies, and/or labels. Please allow a total of two weeks for kit requests to be fulfilled.

Specimen Collection and Processing Form

Please use the below link to access the collection and processing form for this protocol. This form must be completed prior to shipment. We also ask that all shipments include a physical copy of the shipping manifest portion of the form.

manual of procedures

The below downloadable manual was created specifically for this study. Please feel free to explore the manual through the hyperlinked ‘Table of Contents’. Questions concerning any part of the manual may be directed to biosend@iu.edu for further clarification.

Training slides

These slides correspond to the BioSEND JoHD protocol training. Training is available upon request by contacting biosend@iu.edu.

Sample Shipping

BioSEND can receive samples Monday-Friday, excluding holidays. Frozen samples should be shipped M-W. Ambient samples may be shipped on Th.

Site Listing

  • University of Iowa
  • University of California-Davis
  • University of Texas
  • Columbia University
  • Children's Hospital of Philadelphia
  • Vanderbilt University